In every society, there are people who suffer from diseases that have a severe, chronic, progressive course, are life-threatening, and require vital and, as a rule, costly treatment. For such citizens in the developed countries of the world there are additional state guarantees (social, medical, financial, etc.), which must provide them with vital medical services and goods, including medicines, medical devices, special medical nutrition products, without which life and health can be provided. We find such people under threat. Citizens suffering from rare (orphan) diseases belong to a particularly vulnerable category of people, as their treatment is lifelong, vital and expensive.

According to the EU Recommendation of 8 June 2009 on action in the field of rare (orphan) diseases ? 2009 / ? 151/02 a rare disease is defined as a disease that is life-threatening or characterized by a severe progressive, chronic course, the prevalence of which among the population not more than 5 people per 10,000 population.

In total, there are between 5,000 and 8,000 rare (orphan) diseases in the world, affecting 6-8 percent of the population. One of the main priorities of the WHO is to ensure that states have access to the medical care and rehabilitation they need, including citizens with rare (orphan) diseases.

Given these principles and priorities, Ukraine is committed to providing citizens suffering from rare (orphan) diseases, measures to prevent such diseases, the organization of medical care, continuous and free access to essential medicines, medical devices and relevant food products for special medical food.

About 80% of orphan diseases occur at the genetic level, 20% of rare diseases are the result of oncological and onco hematological diseases, infections, autoimmune diseases. In 75% of cases, orphan diseases develop in childhood, but the symptoms of some of them may occur in adults. In most cases, these diseases are chronic, accompanied by disability and often lead to death. It should be noted that lethal outcomes for 30% of patients occur before the age of 5 years. 50% of orphan diseases lead to disability, one in five patients suffers from pain, one in three cannot lead an independent lifestyle.

To identify the risks of orphan diseases from the first days of life, in Ukraine newborns are given early diagnosis - newborn screening, which is currently the most accurate way of early diagnosis of genetically determined pathologies, which detects diseases that can seriously affect mental and physical development of children.

In order to implement the state policy on newborn screening and control and monitoring of the incidence of orphan diseases among children, the National Information System of Newborn Screening (NBS) is being created.

In line with this, UNDP seeks the services of a National Consultant to conduct business analysis for processes connected with the National Information System of Newborn Screening.

MAIN OBJECTIVES OF THE ASSIGNMENT

The main objective of this assignment is to conduct business analysis  for processes connected with the National Information System of Newborn Screening in part of working with patient registration, electronic medicine cards and consents on procedures. 

DESCRIPTION OF RESPONSIBILITIES / SCOPE OF WORK

The Consultant will be responsible for conducting the following activities in order to achieve the overall goal of the assignment:

• Conducting interviews with stakeholders in frames of their current functions, further functional requests and potential user-experience;
• Review and analyze legislation which regulates end-to-end processes for National Information System of Newborn Screening;
• Work with Maternity hospitals, specialized laboratories, Medical and genetic centers, National Health Service of Ukraine (NHSU), State Enterprise “E-Zdorovya”, Non-government organizations, Volunteer specialists to define business processes, stakeholder needs and their flow;
• To analyze BPs, draft technical recommendations and requirements;
• Describe and analyze “as is” business process;
• Suggest and describe  “to be”  business process for each case (if required);
• Compilate requirements, description of back-end logic.
• Create technical tasks for development/updating of systems;
• Work with developers to clarify or elucidate requirements;
• Support the process of development / deployment of upgrades / fixes / new features;
• QA for delivered releases (partial or on Project Manager’s request).

DELIVERABLES

COPYRIGHT

The Deliverables shall be submitted in Ukrainian/English. The title rights, copyrights and all other rights whatsoever nature in any material produced under the provisions of this TOR will be vested exclusively in UNDP.

MONITORING/REPORTING REQUIREMENTS

Work-progress reporting/monitoring meetings will be held with the National Consultant on a regular basis. UNDP will be responsible for all quality control and evaluation of work-progress of the performance of the National Consultant. No reports or documents should be published or distributed to any third party without prior approval of the UNDP.

The Consultant will duly inform UNDP of any problems, issues or delays arising in the course of implementation of assignment and take necessary steps to address them.

All reports and results are to be submitted to the UNDP in electronic form (*.docx, *.xlsx, *.pptx, and *.pdf or other formats accepted by UNDP). All deliverables and presentations shall be provided in Ukrainian/English, all reports shall be submitted in English.

PROPOSED PAYMENT METHOD

Payments will be made in 4 tranches according to the following payment schedule:

• upon satisfactory submission of deliverable #1 – 25%
• upon satisfactory submission of deliverable #2 – 25%
• upon satisfactory submission of deliverable #3 – 25%
• upon satisfactory submission of deliverable #4 – 25%

MANAGEMENT ARRANGEMENTS

The consultant shall be responsible for managing the process of the work implementation, its resources, logistics and expenditures related to the tasks in a timely and accurate manner. The consultant will be reporting to the UNDP Health Programme Specialist in liaison with the Project manager of NBS Project from the Ministry of Health side.

• Demonstrate/safeguard ethics and integrity.
• Demonstrate corporate knowledge and sound judgment.
• Self-development, initiative-taking.
• Act as a team player.
• Encourage and participate in open communication in the team, communicate effectively.
• Create synergies through self-control.
• Manage conflict.
• Informed and transparent decision-making.

EXPERIENCE AND QUALIFICATIONS REQUIREMENTS

Minimum qualifications and experience:

Education:

• University degree in IT, programming, technical sciences or other related field

Experience:

• At least 2 years of experience in IT as a business analyst and/or system analyst

• At least 1 year of experience in eHealth field

• Knowledge of document analysis, writing user stories, functional decomposition, creating and using BPMN and standard UML tools (draw.io, Microsoft Visio or  their analogues)

• Proficiency with project management tools: Jira, Confluence, Trello (or analogue) will be considered an advantage

•The knowledge of API tools (Postman, Altova XMLSpy or their analogues) with logging/monitoring tools (Kibana and Grafana or their analogues) will be considered an advantage

• Proficiency in Ukrainian, working knowledge of English

DOCUMENTS TO BE INCLUDED WHEN SUBMITTING THE PROPOSALS

Applicants shall submit the following documents:

Note: UNDP documents templates are available at the following link:

https://www.dropbox.com/sh/gl77bauo27ed0l9/AACGhkF0QmlC5dhm5HZutu2Fa?dl=0

EVALUATION
University degree in IT, programming, technical sciences or other related field (Bachelor's degree - 17 pts, Master`s degree - 20 pts)

• At least two years relevant professional work experience in IT as a business analyst and/or system analyst (2 years - 15 pts, 3-5 years - 17 pt, 6 years and more - 20 pts)
• At least one year of relevant professional experience in eHealth field (1 year – 3 pts, 2 years and above - 5 pts)
• Practical experience with business analysis methods (document analysis, writing user stories, functional decomposition, creating and using BPMN and standard UML tools (draw.io, Microsoft Visio or  their analogues), not structured written example - 7 pts, well written and structured example - 9 pts
• Proficiency of working with API tools (Postman, Altova XMLSpy or their analogues) with logging/monitoring tools (Kibana and Grafana or their analogues) (1 year – 2 pts, 2 years and above - 3 pts)
• Proficiency with project management tools: Jira, Confluence, Trello (or analogue) - 3 pts
• Proficiency in Ukrainian and working knowledge of English - 7 pts, proficiency in Ukrainian  and English – 10 pts

Cumulative analysis

?Contract award shall be made to the incumbent whose offer has been evaluated and determined as:

a) responsive/compliant/acceptable, and

b) having received the cumulative highest score out of a predetermined set of weighted technical and financial criteria specific to the solicitation.

* Technical Criteria weight: 70%

* Financial Criteria weight: 30%

Only candidates obtaining a minimum 70% from the maximum available technical score (49 points) would be considered for the Financial Evaluation

The maximum number of points assigned to the financial proposal is allocated to the lowest price proposal and will equal to 30. All other price proposals will be evaluated and assigned points, as per below formula:

30 points [max points available for financial part] x [lowest of all evaluated offered prices among responsive offers] / [evaluated price].

The proposal obtaining the overall cumulatively highest score after adding the score of the technical proposal and the financial proposal will be considered as the most compliant offer and will be awarded a contract.

Travel

In the case of unforeseeable travel, payment of travel costs including tickets, lodging and terminal expenses should be agreed upon, between the respective business unit and the Consultant, prior to travel and will be reimbursed. In general, UNDP should not accept travel costs exceeding those of an economy class ticket. Should the IC wish to travel on a higher class he/she should do so using their own resources.